INFLUENCE OF THE COVID-19 PANDEMIC ON THERAPY DELIVERY FOR CHILDREN WITH ASD: PARENTAL EVALUATION OF PARTICIPATION, SIGNIFICANCE FOR FUNCTIONING AND SATISFACTION

Monika Skura; Weronika Lorens-Rosa; Anna Steinhagen

doi:10.21697/fp.2023.1.18

Published: 2023-09-01

Vol. 13 No. 1 (2023)

INFLUENCE OF THE COVID-19 PANDEMIC ON THERAPY DELIVERY FOR CHILDREN WITH ASD: PARENTAL EVALUATION OF PARTICIPATION, SIGNIFICANCE FOR FUNCTIONING AND SATISFACTION

Monika Skura , Weronika Lorens-Rosa , Anna Steinhagen

Pedagogical Forum

Section: Colloquia

https://doi.org/10.21697/fp.2023.1.18

Abstract

In our study, we wanted to determine how parents of children on the autistic spectrum, assessed their child's therapy during and before the pandemic. We tried to determine the children's participation in therapy, the change in frequency, the form and type of therapy, parental evaluation of competence and satisfaction with the therapy. For this purpose, we used a questionnaire. The results showed that almost all children participated in therapy during this period despite the limitations caused by the pandemic. However, the number of hours of therapy provided to children in institutions decreased, while that provided remotely increased. The effectiveness of the conducted therapies decreased compared to the time before the pandemic. The most negative changes in children's functioning occurred in the areas of social functioning, sensory and sensory integration. The results showed that the competence of the parents either increased or held at the same level, whilst their satisfaction in their child's therapy significantly decreased during the pandemic.

Keywords:

parents of children with ASD, therapy for children with ASD, Therapy services, COVID-19

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Skura, M., Lorens-Rosa, W., & Steinhagen, A. (2023). INFLUENCE OF THE COVID-19 PANDEMIC ON THERAPY DELIVERY FOR CHILDREN WITH ASD: PARENTAL EVALUATION OF PARTICIPATION, SIGNIFICANCE FOR FUNCTIONING AND SATISFACTION. Pedagogical Forum, 13(1), 301–317. https://doi.org/10.21697/fp.2023.1.18

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References

Ameis S. H., Lai M.C., Mulsant B. H., Szatmari P. (2020). Coping, fostering resilience, and driving care innovation foric people and their families during the COVID-19 pandemic and beyond. ,,Molecular Autism”, vol.11(1), s.61-70. DOI: https://doi.org/10.1186/s13229-020-00365-y
Google Scholar

Baweja R., Brown S.L., Edwards E.M., Murray M.J. (2021). COVID-19 pandemic and impact onpatients with autism spectrum disorder. ,,Journal of Autism Developmental Disorders”, vol. 52, s.473–482. DOI: https://doi.org/10.1007/s10803-021-04950-9
Google Scholar

Chevallier C., Kohls G., Troiani V., Brodkin E.S., Schultz R.T. (2012). The social motivation theory of autism.,,Trends in Cognitive Sciences”, vol.16, s. 231–239. DOI: https://doi.org/10.1016/j.tics.2012.02.007
Google Scholar

Clark P., Rutter M. (1979). Task difficulty and task performance in autistic children. ,,Journal of Child Psychology and Psychiatry”, vol.20, s. 271-285. DOI: https://doi.org/10.1111/j.1469-7610.1979.tb00514.x
Google Scholar

Colizzi M., et al.(2020). Psychosocial and Behavioral Impact of COVID-19 in Autism Spectrum Disorder: An Online Parent Survey. ,,Brain Sciences”, vol. 10, s. 341. DOI: https://doi.org/10.3390/brainsci10060341
Google Scholar

Deb S.S., Retzer A., Roy M., Acharya R., Limbu B., Roy A. (2020). The effectiveness of parent training for children with autism spectrum disorder: a systematic review and meta-analyses. ,,BMC Psychiatry”, vol.20(1), s.2-24. DOI: https://doi.org/10.1186/s12888-020-02973-7
Google Scholar

Eshraghi A.A, Li C., Alessandri M., Messinger D.S., Eshraghi S.R., Mittal R., Armstrong F.D. (2020). COVID-19: overcoming the challenges faced by individuals with autism and their families. ,,Lancet Psychiatry”, vol.7(6), s.481-483. DOI: https://doi.org/10.1016/S2215-0366(20)30197-8
Google Scholar

Ferguson E.F., Jimenez-Munoz M., Feerst H., Vernon T.V. (2021). Predictors of satisfaction with autism treatment services during Covid-19. ,,Journal of autism and developmental disorders”, vol.52, s.3686-3697. DOI: https://doi.org/10.1007/s10803-021-05232-0
Google Scholar

Huang S.J., Sun T., Zhu Y.N., Song S.S., Zhang J.J., Huang L.J., Chen Q., Peng G.Y., Zhao D.M., Yu H., et al. (2021). Impact of the COVID-19 pandemic on children with asd and their families: An online survey in China. ,,Psychology Research Behavior Management”, vol. 14, s. 289–297. DOI: https://doi.org/10.2147/PRBM.S293426
Google Scholar

Ingersoll B., Berger N. I. (2015). Parent engagement with a tele- health-based parent-mediated intervention program for children with autism spectrum disorders: Predictors of program use and parent outcomes. ,,Journal of Medical Internet Research”, vol.17(10), s. 227. DOI: https://doi.org/10.2196/jmir.4913
Google Scholar

Koegel R., Mentis M. (1985). Motivation in childhood autism: can they or won’t they? ,,Journal of Child Psychology and Psychiatry”, vol.26(2), s.185-191. DOI: https://doi.org/10.1111/j.1469-7610.1985.tb02259.x
Google Scholar

Kurzrok J., McBride E., Grossman R.B.. (2021). Autism-specific parenting self-efficacy: an
Google Scholar

examination of the role of parent-reported intervention involvement, satisfaction with intervention-related training, and caregiver burden. ,,Autism”, vol. 25, s. 1395–1408.
Google Scholar

Latzer I. T., Leitner Y., Karnieli-Miller O.(2021). Core experiences of parents of children with autism during the COVID-19 pandemic lockdown. ,,Autism”, vol. 25 (4), s. 1047- 1059.
Google Scholar

MacMillan D. L. (1971). The problem of motivation in the education of the mentally retarded. ,,Exceptional Children”, vol. 37,s. 579-586. DOI: https://doi.org/10.1177/001440297103700803
Google Scholar

Maddox B. B., Crabbe S., Beidas R. S., Brookman-Frazee L., Cannuscio C. C., Miller J. S., Nicolaidis C., Mandell D. S. (2020). I wouldn’t know where to start: Perspectives from clini- cians, agency leaders, and autistic adults on improving community mental health services for autistic adults. ,,Autism”, vol.24(4), s.919–930. DOI: https://doi.org/10.1177/1362361319882227
Google Scholar

Menahem S., Halasz G. (2000). Parental non-compliance: a paediatric dilemma. A medical and psychodynamic perspective. ,,Child Care Health and Development”, vol.26(1),s. 61-72. DOI: https://doi.org/10.1046/j.1365-2214.2000.00115.x
Google Scholar

Mutluer T., DoenyasC. , Genc H.A. (2020). Behavioral implications of the COVID-19 process for autism spectrum disorder, and individuals’ comprehension of and reactions to the pandemic conditions. ,,Frontiers in Psychiatry”, vol. 11: 561882. DOI: https://doi.org/10.3389/fpsyt.2020.561882
Google Scholar

Narzisi A. (2020). Handle the autism spectrum condition during coronavirus (COVID-19) Stay at Home Period: ten tips for helping parents and caregivers of young children. ,,Brain Sciences”, vol.10(4), s.207. DOI: https://doi.org/10.3390/brainsci10040207
Google Scholar

NIK o wsparciu osób z autyzmem i zespołem Aspergera w przygotowaniu do samodzielnego funkcjonowania (2020)
Google Scholar

https://www.nik.gov.pl/aktualnosci/wsparcie-osob-z-autyzmem-i-zespolem-aspergera.html (16.12.2022).
Google Scholar

Ogólnopolski Spis Autyzmu Sytuacja młodzieży i dorosłych z autyzmem w Polsce (2016)
Google Scholar

http://www.spisautyzmu.pl/index_files/raport_OSA.pdf (16.12.2022).
Google Scholar

Rilveria J.R. (2022). Understanding the secondary system of therapeutic alliance in autism interventions from the perspectives of parents and caregivers.,,International journal of Child Care and Education Policy”, vol.16(1),s.2-24. DOI: https://doi.org/10.1186/s40723-021-00094-6
Google Scholar

Rodda M. (1977). Language and language-disordered children. ,,Bulletin of the British Psychological Society”, vol.30, s.139-142.
Google Scholar

Rogers S. J., Vismara L. A. (2008). Evidence-based comprehensive treatments for early autism. ,,Journal of Clinical Child and Adolescent Psychology”, vol. 37, s. 8–38. DOI: https://doi.org/10.1080/15374410701817808
Google Scholar

Runco M. A., Schreibman L. (1983). Parental judgments of behavior therapy efficacy with autistic children: A social validation. ,,Journal of Autism and Developmental Disorders”, vol. 13, s. 237–248. DOI: https://doi.org/10.1007/BF01531563
Google Scholar

Saliverou M., Georgiadi M., Tomprou D.M., Loizidou-Ieridou N., Plexousakis S. (2021). The Impact of COVID-19 Pandemic Containment Measures on Families and Children with Moderate and High- Functioning ASD (Autism Spectrum Disorder). ,,Education Sciences”, vol. 11(12),s.783. DOI: https://doi.org/10.3390/educsci11120783
Google Scholar

Stankovic M., Jelena S., Stankovic M., Shih A., Stojanovic A., Stankovic S. (2020). The Serbian Experience of Challenges of Parenting Children with Autism Spectrum Disorders during the COVID-19 Pandemic and the State of Emergency with the Police Lockdown.,,European Child and Adolescent Psychiatry”, vol.31(4), s.693-698. DOI: https://doi.org/10.1007/s00787-021-01917-0
Google Scholar

Solomon D., Soares N. (2020). Telehealth approaches to care coordination in autism spectrum disorder.,,Interprofessional care coordination for pediatric autism spectrum disorder”, vol.24, s. 289–306. DOI: https://doi.org/10.1007/978-3-030-46295-6_19
Google Scholar

Sofronoff K., Farbotko M. (2002). The effectiveness of parent management training to increase self-efficacy in parents of children with Asperger syndrome. ,,Autism”, vol. 6, s.271–286. DOI: https://doi.org/10.1177/1362361302006003005
Google Scholar

Ślifirczyk A., Krajewska-Kułak E., Krukowska M., Maciorkowska E. (2019). Knowledge of parents of children with autism from Poland, Belarus and France concerning their child’s condition. ,,Health Problems of Civilization”, vol.13(2), s.114-122. DOI: https://doi.org/10.5114/hpc.2018.80228
Google Scholar

Tint A., Maughan A. L., Weiss J. A. (2017). Community participation of youth with intellectual disability and autism spectrum dis- order. ,,Journal of Intellectual Disability Research”, vol. 61(2), s. 168–180. DOI: https://doi.org/10.1111/jir.12311
Google Scholar

Tokatly Latzer I., Leitner Y., Karnieli-Miller O. (2021). Core Experiences of Parents of Children with Autism during the COVID-19 Pandemic Lockdown. ,,Autism”, vol. 25(4), s. 1047-1059. DOI: https://doi.org/10.1177/1362361320984317
Google Scholar

White S. W., Stoppelbein L., Scott H., Spain, D. (2021b). It took a pandemic: Perspectives on impact, stress, and telehealth from caregivers of people with autism. ,,Research in Developmental Disabilities”, vol.113, 103938. DOI: https://doi.org/10.1016/j.ridd.2021.103938
Google Scholar