DOROSŁOŚĆ OSÓB W SPEKTRUM ZABURZEŃ AUTYSTYCZNYCH  – ANALIZA WYBRANYCH OBSZARÓW

Aleksandra Buchholz; Kornelia Czerwińska

doi:10.21697/fp.2023.1.03

Published: 2023-09-01

Vol. 13 No. 1 (2023)

ADULTHOOD OF PEOPLE WITH AUTISTIC SPECTRUM DISORDERS - ANALYSIS OF SELECTED AREAS

Aleksandra Buchholz , Kornelia Czerwińska

Pedagogical Forum

Section: Topic

https://doi.org/10.21697/fp.2023.1.03

Abstract

Adulthood of people on the autistic spectrum disorder (ASD) has only recently become an area of interest for special educators and psychologists. The biopsychosocial model of disability and the inclusive perspective of analyzes of marginalized groups emphasize the interactive and dynamic dimension of the functioning of people with ASD at different stages of life and in relation to its various dimensions. The article, referring to the inclusive paradigm, presents the specificity of functioning of people with ASD in the context of building interpersonal relationships, including partnerships and taking up paid work, as the most important areas of adulthood affecting the quality of life of people with ASD.

Keywords:

autism spectrum disorder, adulthood, interpersonal relationships, work, family

Most read articles by the same author(s)

Kornelia Czerwińska, Individual with progressing vision loss – functioning in the areas of education and rehabilitation , Pedagogical Forum: Vol. 6 No. 1 (2016)
Kornelia Czerwińska, Agnieszka Piskorska, Cognitive functioning of a blind student in a foreign language classroom , Pedagogical Forum: Vol. 8 No. 2 (2018)
Aleksandra Buchholz, Kornelia Czerwińska, Mariola Wolan-Nowakowska , PSYCHOLOGICAL RESILIENCE OF MOTHERS OF CHILDREN WITH AUTISM SPECTRUM DISORDERS , Pedagogical Forum: Vol. 13 No. 1 (2023): Student's communication with the autism spectrum
Kornelia Czerwińska, Psycho-social aspects of vision and hearing loss in late adulthood , Pedagogical Forum: Vol. 12 No. 1 (2022): 100-lecie pedagogiki specjalnej

Download files

pdf (Język Polski)

Citation rules

Buchholz, A., & Czerwińska, K. (2023). ADULTHOOD OF PEOPLE WITH AUTISTIC SPECTRUM DISORDERS - ANALYSIS OF SELECTED AREAS. Pedagogical Forum, 13(1), 31–43. https://doi.org/10.21697/fp.2023.1.03

Cited by / Share

Licence

This work is licensed under a Creative Commons Attribution-NoDerivatives 4.0 International License.

References

American Psychiatric Association (2013). Diagnostic and Statistical Mannual of Mental Disorders: DSM-5. Arlington, United States: American Psychiatric Association Publishing. DOI: https://doi.org/10.1176/appi.books.9780890425596
Google Scholar

Anderson C., Butt C., Sarsony C. (2021). Young adults on the autism spectrum and early employment related experiences: Aspirations and obstacles. „Journal of Autism and Developmental Disorders”, nr 51(1), s. 88-105. DOI: https://doi.org/10.1007/s10803-020-04513-4
Google Scholar

Armstrong T. (2010). The power of neurodiversity. Unleashing the advantages of your differently wired brain. Philadelphia: Da Capo Press.
Google Scholar

Ayres M, Parr J. R., Rodgers J., Mason D., Avery L., Flynn D. (2018). A systematic review of quality of life of adults on the autism spectrum. „Autism”, nr 22(7), s. 774-783. DOI: https://doi.org/10.1177/1362361317714988
Google Scholar

Baldwin S., Costley D. (2016). The experiences and needs of female adults with high- -functioning autism spectrum disorder. „Autism: The International Journal of Research and Practice”, nr 20(4), s. 483–495. DOI: https://doi.org/10.1177/1362361315590805
Google Scholar

Bargiela S., Steward R., Mandy W. (2016). The experiences of late-diagnosed women with autism spectrum conditions: an investigation of the female autism phenotype. „Journal of Autism and Developmental Disorders”, nr 46, s. 3281-3294. DOI: https://doi.org/10.1007/s10803-016-2872-8
Google Scholar

Baron-Cohen S. (2015). ASD vs. ASC: Is one small letter important? IMFAR 2015. 14th Annual International Meeting For Autism Research. International Society for Autism Research (INSAR). Proceedings. Salt Lake City, UT, USA.
Google Scholar

Beardon L. (2017). Autism and Asperger syndrome in adults. London: Sheldon Press.
Google Scholar

Bogdashina O. (2019). Trudności w percepcji sensorycznej w autyzmie i zespole Aspergera. Inne doświadczenia sensoryczne – inne światy percepcyjne. Gdańsk: Harmonia.
Google Scholar

Bush H. H. (2016). Self-reported sexuality among women with and without autism spectrum disorder (ASD). Graduate Doctoral Dissertations. https://scholarworks.umb.edu/doctoral_dissertations/243 (otwarty: 28.12.2021)
Google Scholar

Cook B. Garnett M. (red). (2018). Spectrum women. Walking on the beat of autism. London, Philadelphia: Jessica Kingsley Publishers.
Google Scholar

Coren E., Hutchfield J., Thomae M., Gustafsson C. (2010). Parent training support for intellectually disabled parents. „Campbell Systematic Reviews”, nr 6(1), s. 1-60. DOI: https://doi.org/10.4073/csr.2010.3
Google Scholar

Crompton C. J., Hallett S., Ropar D., Flynn E., Fletcher-Watson S. (2020). ‘I never realised everybody felt as happy as I do when I am around autistic people’: A thematic analysis of autistic adults’ relationships with autistic and neurotypical friends and family. „Autism”, nr 24(6), s.1438-1448. DOI: https://doi.org/10.1177/1362361320908976
Google Scholar

Dewinter J., De Graaf H. Begeer S. (2017). Sexual orientation, gender identity, and romantic relationships in adolescents and adults with autism spectrum disorder. „Journal of Autism and Developmental Disorders”, nr 47, s. 2927–2934. DOI: https://doi.org/10.1007/s10803-017-3199-9
Google Scholar

Drew G. (2017). An adult with an autism diagnosis. A guide for the newly diagnosed. London and Philadelphia: Jessica Kingsley Publishers.
Google Scholar

DuBois D., Renwick R., Chowdhury M., Eisen S., Cameron D. (2020). Engagement in community life: perspectives of youths with intellectual and developmental disabilities on families’ roles. „Disability and Rehabilitation”, nr 42(20), s. 2923-2934. DOI: https://doi.org/10.1080/09638288.2019.1576781
Google Scholar

Ekins E. (2021). Queerly Autistic. The ultimate guide for LGBTQIA+ teens on the spectrum. London and Philadelphia: Jessica Kingsley Publishers.
Google Scholar

Fetell Lee E. (2020). Joyful, Zaprojektuj radość w swoim otoczeniu. Łódź: Wydawnictwo Feeria.
Google Scholar

Finke E. H., McCarthy J. H., Sarver N. A. (2019). Self-perception of friendship style: Young adults with and without autism spectrum disorder. „Autism & Developmental Language Impairments”, nr 4, s. 1-16. DOI: https://doi.org/10.1177/2396941519855390
Google Scholar

Francisco M. P. B., Hartman M., Wang Y. (2020). Inclusion and special education. „Education Sciences”, nr 10(9), 1-17. DOI: https://doi.org/10.3390/educsci10090238
Google Scholar

George, R., Stokes, M. A. (2018). Sexual orientation in autism spectrum disorder. „Autism Research”, nr 11, s. 133–141. DOI: https://doi.org/10.1002/aur.1892
Google Scholar

Goethals T., De Schauwer E., Van Hove, G. (2015). Weaving intersectionality into disability studies research: Inclusion, reflexivity and anti-essentialism. „Journal of Diversity and Gender Studies”, nr 1-2 (2), s. 75-94. DOI: https://doi.org/10.11116/jdivegendstud.2.1-2.0075
Google Scholar

Green R. M., Travers A. M., Howe Y., McDougle C. J. (2019). Women and autism spectrum disorder: Diagnosis and implications for treatment of adolescents and adults. „Current Psychiatry Reports”, nr 21(22), s. 1-8. DOI: https://doi.org/10.1007/s11920-019-1006-3
Google Scholar

Grove R., Hoekstra R. A., Wierda M., Begeer S. (2018). Special interests and subjective well-being in autistic adults. „Autism Research”, nr 11(5), s. 766–775. DOI: https://doi.org/10.1002/aur.1931
Google Scholar

Gutiérrez-Bermejo B., Jenaro C. (2022). Sexual assistance for people with intellectual disabilities: Proposal for a service delivery model. „Sexuality and Disability”, nr 40, s. 347–362. DOI: https://doi.org/10.1007/s11195-022-09729-z
Google Scholar

Hedley D., Uljarević M. (2018). Systematic review of suicide in autism spectrum disorder: current trends and implications. „Current Developmental Disorders Reports”, nr 5, s. 65–76. DOI: https://doi.org/10.1007/s40474-018-0133-6
Google Scholar

Henault I. (2015). Zespół Aspergera a seksualność. Od dojrzewania poprzez dorosłość. Gdańsk: Harmonia.
Google Scholar

Hendrickx S. (2018). Kobiety i dziewczyny ze spektrum autyzmu. Od wczesnego dzieciństwa do późnej starości. Kraków: Wydawnictwo UJ.
Google Scholar

Hirvikoski T, Mittendorfer-Rutz E, Boman M, Larsson H, Lichtenstein P, Bölte S. (2016). Premature mortality in autism spectrum disorder. „The British Journal of Psychiatry” nr 208(3), s. 232-238. DOI: https://doi.org/10.1192/bjp.bp.114.160192
Google Scholar

Jurkevythz R., Campbell M., Morgan L. (2020). Spectrum women. Autism and parenting. London, Philadelphia: Jessica Kingsley Publishers.
Google Scholar

Kanner L. (1943). Autistic disturbance of affective contact. „Nervous Child”, nr 2, s. 217-250.
Google Scholar

Khalifa G., Sharif Z., Sultan M., Di Rezze M. (2020). Workplace accommodations for adults with autism spectrum disorder: a scoping review. „Disability and Rehabilitation”, nr 9(42), s. 1316-1331. DOI: https://doi.org/10.1080/09638288.2018.1527952
Google Scholar

Kijak R. (2022). CripSex. Ekspresje seksualne osób z niepełnosprawnością intelektualną. Kraków: Oficyna Wydawnicza Impuls.
Google Scholar

Kościelska M. (2012). Przeżywanie własnej i cudzej dorosłości przez osoby z niepełnosprawnością. W: Kijak R.J. (red.). Niepełnosprawność – w zwierciadle dorosłości. Kraków: Oficyna Wydawnicza Impuls.
Google Scholar

Krause A. (2010). Współczesne paradygmaty pedagogiki specjalnej. Kraków: Oficyna Wydawnicza Impuls.
Google Scholar

Król A. (2018). Niepełnosprawność i sprawiedliwość reprodukcyjna. Zarys wybranych zagadnień dotyczących kobiet z niepełnosprawnościami. „Annales Universitatis Paedagogicae Cracoviensis Studia de Cultura”, nr 10(1), s. 84-99. DOI: https://doi.org/10.24917/20837275.10.1.7
Google Scholar

Lai M., Lombardo M., Ruigrok A., Chakrabarti B., Auyeung B., Szatmari P., Happé F., Baron-Cohen S. (2017). Quantifying and exploring camouflaging in men and women with autism. „Autism”, nr 21(6), s. 690-702. DOI: https://doi.org/10.1177/1362361316671012
Google Scholar

Laugeson E. (2013). The science of making friends. Helping socially challenger teens and young adults. Hoboken, NJ: Jossey Bass.
Google Scholar

Lawson W. (2015). Older adults and autism spectrum conditio. An introduction and guide. London and Filadelphia: Jessica Kingsley Publishers.
Google Scholar

Liasidou A. (2013). Intersectional understandings of disability and implications for a social justice reform agenda in education policy and practice. „Disability & Society”, nr 28(3), s. 299–312. DOI: https://doi.org/10.1080/09687599.2012.710012
Google Scholar

Lord C., McCauley J. B., Pepa L. A., Huerta M., Pickles A. (2020). Work, living, and the pursuit of happiness: Vocational and psychosocial outcomes for young adults with autism. „Autism”, nr 24 (7), s. 1691-1703. DOI: https://doi.org/10.1177/1362361320919246
Google Scholar

Lorenz T., Heinitz K. (2014). Asperger’s - Different, not less: Occupational strength and job interest of individuals with Asperger’s syndrome. „PLoS ONE”, nr 9(6), s. 1-8. DOI: https://doi.org/10.1371/journal.pone.0100358
Google Scholar

Mairs N. (1996). Remembering the bone house. New York: Randome House.
Google Scholar

Mason D., McConachie H., Garland D., Petrou A., Rodgers J., Parr J. R. (2018). Predictors of quality of life for autistic adults. „Autism Research”, nr 8(11), s. 1138-1147. DOI: https://doi.org/10.1002/aur.1965
Google Scholar

Mendes E. A., Maroney M. R. (2019). Gender identity, sexuality and autism. Voices from across the spectrum. London and Philadelphia: Jessica Kingsley Publishers.
Google Scholar

Milner P., Frawley P. (2019). From ‘on’ to ‘with’ to ‘by:’ people with a learning disability creating a space for the third wave of Inclusive Research. „Qualitative Research”, nr 19(4), s. 382–398. DOI: https://doi.org/10.1177/1468794118781385
Google Scholar

Milner V., McIntosh H., Colvert E., Happé F. (2019). A Qualitative exploration of the female experience of autism spectrum disorder (ASD). „Journal of Autism and Developmental Disorders”, nr 49, s. 2389–2402. DOI: https://doi.org/10.1007/s10803-019-03906-4
Google Scholar

Müller A. (2020). Let`s (crip) dance! Choreograficzne emancypacje ciał nienormatywnych. „Teksty Drugie. Studia o Niepełnosprawności”, nr 2, s. 48-65. DOI: https://doi.org/10.18318/td.2020.2.4
Google Scholar

National Center on Educational Restructuring and Inclusion (1995). National Study of Inclusive Education. The City University of New York: New York.
Google Scholar

Nerenberg J. (2022). Neuroróżnorodne. Jak żyć w świecie skrojonym nie na naszą miarę. Warszawa: Wydawnictwo Krytyki Politycznej.
Google Scholar

Orsmond G. I., Krauss M. W., Seltzer M. M. (2004). Peer relationships and social and recreational activities among adolescents and adults with autism. „Journal of Autism and Developmental Disorders”, nr 34(3), s. 245-56. DOI: https://doi.org/10.1023/B:JADD.0000029547.96610.df
Google Scholar

Pease B., Pease A. (2005). The definitive book of body language. London: Orion Books.
Google Scholar

Płatos M. (red.). (2016). Ogólnopolski spis autyzmu (OSA). Sytuacja młodzieży i dorosłych z autyzmem w Polsce. Warszawa: Stowarzyszenie Innowacji Społecznych „Mary i Max”.
Google Scholar

Płatos M., Pisula E. (2019). Service use, unmet needs, and barriers to services among adolescents and young adults with autism spectrum disorder in Poland. „BMC Health Services Research”, nr 19(587), s. 1-11. DOI: https://doi.org/10.1186/s12913-019-4432-3
Google Scholar

Regan T. M. (2016). Understanding Autism in adults and aging adults. Improving diagnosis and quality of life. USA: Indiego Publishing.
Google Scholar

Sedgewick F., Hill V., Yates R., Pickering L., Pellicano E. (2016). Gender differences in the social motivation and friendship experiences of autistic and non-autistic adolescents. „Journal of Autism and Developmental Disorders”, nr 46(4), s. 1297–1306. DOI: https://doi.org/10.1007/s10803-015-2669-1
Google Scholar

Silberman S. (2015). Neurotribes, the legacy of autism and how to think smarter about people who think differently. Crows Nest Australia: Allen & Unwin.
Google Scholar

Simonoff E., Kent, R., Stringer D., Lord C., Briskman J., Lukito S., Pickles A., Charman Y., Baird, G. (2020). Trajectories in symptoms of autism and cognitive ability in autism from childhood to adult life: Findings from a longitudinal epidemiological cohort. „Journal of the American Academy of Child & Adolescent Psychiatry”, nr 12(59), s. 1342-1352. DOI: https://doi.org/10.1016/j.jaac.2019.11.020
Google Scholar

Sosnowy C., Silverman C., Shattuck P., Garfield T. (2019). Setbacks and successes: How young adults on the autism spectrum seek friendship. „Autism in Adulthood”, nr 1(1), s. 44-51. DOI: https://doi.org/10.1089/aut.2018.0009
Google Scholar

Steward R. (2014). The independent woman`s handbook for super safe living on the autistic spectrum. London and Philadelphia: Jessica Kingsley Publishers.
Google Scholar

Tint A., Hamdani Y., Sawyer A., Desarkar P., Ameis S. H., Bardikoff N., Meng-Chuan Lai M.-C. (2018). Wellness efforts for autistic women. „Current Developmental Disorders Reports”, nr 5(4), s. 207–216. DOI: https://doi.org/10.1007/s40474-018-0148-z
Google Scholar

Trubanova A., Donlon K., Kreiser N. L., Ollendick T. H., White S. W. (2014). Underidentification of autism spectrum disorder in females: A case series illustrating the unique presentation of this disorder in young women. „Scandinavian Journal of Child and Adolescent Psychiatry and Psychology”, nr 2(2), s. 66-76. DOI: https://doi.org/10.21307/sjcapp-2014-010
Google Scholar

Verdonschot M. M. L., De Witte L. P., Reichrath E., Buntinx W. H. E., Curfs L. M. G. (2009). Community participation of people with an intellectual disability: a review of empirical findings. „Journal of Intellectual Disability Research”, nr 4 (53), s. 303-318. DOI: https://doi.org/10.1111/j.1365-2788.2008.01144.x
Google Scholar

Wade C., Llewellyn G., Matthews J. (2009). Review of parent training interventions for parents with intellectual disability. „Journal of Applied Research in Intellectual Disability”, nr 21(4), s. 351-366. DOI: https://doi.org/10.1111/j.1468-3148.2008.00449.x
Google Scholar

Williams D. L., Cherkassky V. L., Mason R. A., Keller T. A., Minshew N. J., Just M. A. (2013). Brain function differences in language processing in children and adults with autism. „Autism Research”, nr 4(6), s. 288-302. DOI: https://doi.org/10.1002/aur.1291
Google Scholar